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ICC Sydney

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Empowering Young People with Chronic Fatigue Syndrome – sharing learnings from an MDT lead self-management course

Session outline

In this workshop we will share the process of assisting young people with Chronic Fatigue Syndrome (CFS) through clinical interventions and developing a research program with close links to the clinical service. Participants are supported to achieve their individual goals in an allied health lead group based setting. We have been running this program for 6 years and will present a summary of our participant outcomes. We will then focus on sharing the key elements of this program. These key elements include: individual goal setting; education around CFS and it’s broad cognitive and biopsychosocial impacts; peer support, and a wholistic approach to care.  Within the program we provide sessions to support diet, stress management, graded activity, pacing, sleep hygiene and the young person’s education pathway. Graded exercise has been challenged; we demonstrate the use of graded activity within the energy envelope to support young people in working towards physical activity goals and participation goals in a safe way. The workshop will outline the format of our program and how we prepare and work with the group of young people and will use a case study format. Written material will also be provided to participants of the workshop. From a research perspective we have been partnered with the Murdoch Children’s Research Institute to support development of an integrated research program for these young people, and lead clinicians form this program will present the work underway.

Learning outcomes

The framework of a wholistic self-management course for young people with CFS and within that:

  • Partnering with clinicians and young people to develop a research program
  • Setting meaningful individual goal for young people with CFS
  • Facilitating group discussions and peer support in CFS
  • How to assist young people with CFS to achieve their exercise and participation gaols.
  • Effective advocacy in the education a training space for young people with CFS
  • Supporting Parents and families

Target audience

  • Allied health
  • Medical practitioners

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